Top > Conditions and Diseases > Facial Differences > Parry-Rombergs Syndrome
Parry-Rombergs Syndrome
General information, contacts, on-line discussion groups and links.
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The Parry Romberg Foundation is a nonprofit organization whose mission is to develop and provide resources for research, advocacy, education, and support for persons with Parry Romberg Syndrome, their families, doctors, and communities.
The Foundation will achieve this mission by raising financial
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Stories from people affected by Parry Romberg syndrome, support and information.
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- support group for people with Romberg's.
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Information compiled by the National Institute of Neurological Disorders and Stroke (NINDS). Definition, treatment, prognosis, research and details of relevant organizations.
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NINDS Parry-Romberg Information Page
Progressive Hemifacial Atrophy
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Parry-Romberg syndrome is a rare disorder characterized by slowly progressive deterioration (atrophy) of the skin and soft
tissues of half of the face (hemifacial atrophy), usually
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