Web Links [Tag : Syndrome]
A non profit support group for Chronic Inflammatory Demyelinating Polyradiculoneuropathy in USA.
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Guide to prevention & cure of autoimmune diseases, Chronic Inflammatory Demyelinating Polyneuropathy (CIDP) ,
Welcome to CIDP International Foundation .
Global Support for medical disorders & CIDP
Number-1 in autoimmune diseases
Prevention & healing of all diseases.
Mission: prevention & reversal of all
تمام بیماریوں
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Medical information including definition, major and related features of the condition, genetics.
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The following was developed from information contained in an article entitled
Clinical Assessment and Multispecialty Management of Apert Syndrome ,
written by Lawrence C. Kaplan, MD, and published in Clinics in Plastic
Surgery-Vol. 18, No. 2, April 1991.
Major Features of Apert Syndrome
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General information about Apert syndrome with photographs of people with the condition. English version follows Swedish text.
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For current information please go to
To live with Aperts syndrome as a child and an adult
Apert's syndrome causes impediments for life:
Apert's syndrome ( acrocephalo syndactyli = high skull plus joined up fingers and toes ) is a summarized name for a number of deformaties in the facial bones,
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Resource for contacts, chat rooms, pen pals and other relevant links.
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Apert Support and Information Network
Where to Go to Network with Others
The purpose of the list is to allow us to quickly trade information, through email - questions, answers, news about individual surgeries coming up, surgical or genetic breakthroughs, whatever! Our subscribers include adults
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Frequently asked questions and answers on Apert syndrome.
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Apert Syndrome is a condition involving distortions of the head and face and webbing of
the hands and feet. Characteristics include:
skull - short from back to front, wide on the sides, and overly tall (
eyes - slightly side-spaced, bulging, the eyelids tilt downward abnormally at the sides
face
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General information, contacts, on-line discussion groups and links.
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The Parry Romberg Foundation is a nonprofit organization whose mission is to develop and provide resources for research, advocacy, education, and support for persons with Parry Romberg Syndrome, their families, doctors, and communities.
The Foundation will achieve this mission by raising financial
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Stories from people affected by Parry Romberg syndrome, support and information.
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- support group for people with Romberg's.
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that was created by one individual. Canny Link is a
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Family support organization which exists to ensure the early and accurate diagnosis of CdLS, promote research into the causes and manifestations of the syndrome, and help people with a diagnosis of CdLS, and others with similar characteristics, make informed decisions throughout their lifetime.
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The Cornelia de Lange Syndrome (CdLS) Foundation is a family support organization that exists to ensure early and accurate diagnosis of CdLS, promote research into the causes and manifestations of the syndrome, and help people with a diagnosis of CdLS make informed decisions throughout their lives. The CdLS Foundation is a national non-profit organization that has served people with CdLS and their families since 1981. The Foundation's mission is reflected in its slogan: Reaching Out, Providing Help, and Giving Hope.
The CdLS Story Bank is a collection of stories from parents, relatives, friends, and caregivers who wish to share their CdLS experience.
These stories let others know they are not alone.
They also provide inspiration, insight and, at times, a little humor.
Cornelia de Lange Syndrome Foundation
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